24th

The 24thhas always been my most favorite holiday. It's the one day a year when everyone slowed down and enjoyed the sweet pleasures of living. This will be one 24th I will always remember. We sent Maggie home to Utah with Emily yesterday. To say it was hard is an understatement. I can't wait to just be mommy again. To find joy in the journey of kissing owies and finding monsters. Ready to be done with machines, monitors, needles, and tears you can't fix.
My love for john continues to grow, I continue to be grateful that he is my forever. He has worked tirelessly to get us into Boston. How grateful I am that he's by my side through all this. Right now we are waiting on a bed opening up. John has been researching our doctor, he is as good as there is so hopefully we will find some answers.

Garrett is getting so he hides under the blankets when the nurses come in. He wants nothing to do with any of them. The nurses here have been amazing. It makes me glad Birdy is a nurse, it means the world to have someone who cares on your side.

Right now they have him on octeotride which is a growth hormone inhibitor so Garrett if your short someday we are sorry. He is on tpn and lips which means all his food is Iv. They have him on a strong antibiotic and nexium. There are tubes everywhere. He has you kiss his little hand with the Iv better several times a day. We have had some hard days, really hard days. Today is a good day.

Right now it's just praying and waiting. The flow has slowed down. He is fasting 100% and that has been hard. He has been pretty angry he can't nurse. It was his one comfort.

Through all of this we feel so blessed for all we have. All our family fasted and prayed for him yesterday. Emily has been here all week. How blessed we are for family. When it comes down to it they are everything.