Well a lot has happened and a lot hasn't happened:) on Saturday night we flew on a medic flight to Boston Children's. They have more technology and they are the best in the nation for genetic abnormalities. We ran a lymphangiogram hoping to find the source of the leak. It was a long four hour test. I think both john and I were confident they would find a leak. They didn't. What we do know is Garrett has done abnormalities on the left side of his lymphatic system. They also think his thoracic duct may not be working like it should causing backup into his system. Dr Fichman came in yesterday to talk to us, he feels like doing a surgery on his intestines and his thoracic duct would be probably the best approach. I don't think he feels like this will get better on its own. Right now there is about 1000 ml of output a day. They have a meeting every Wednesday where a whole team of doctors will review his case and make some decisions.
Garrett got to go to the playroom he loved it! He is also on a clear liquid diet so he is a Popsicle fanatic. After several days of nothing he thinks he is in heaven.
When they had him in for his last test they put in a new pic line that is a double tubes one so they were able to take out his other iv's. That has been really nice. He hated the saline going in and acted like it really hurt him. They haven't poked him since we got here. It is emotionally better on everyone.
Maggie is in Utah, she acts a little ticked at all this. I'm so grateful for my family al the help with mags and all the prayers. Through all this we find we are truly blessed.
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