The last few days have been good days. Tonight I am vividly reminded that no matter how good the days are little boys don't belong in hospitals. They belong at home simply being little boys. The doctors told us that they will operate on Tuesday. We really feel like we are at the best place we can be. Dr. Fish man is the best there is. Originaly it sounded like they would do surgery on his tummy and on his thoracic duct. They feel like his thoracic duct is sluggish and that is what is causing the problems. They had a special meeting where 25 plus doctors get together and talk about special cases. Usually just three or four a week. Garretts condition is unlike anything they have seen here, it just doesn't present itself like this. We are blessed to be someplace where they have the knowledge they do to handle it. After talking it over they are just going to operate on his tummy and pray it will all be okay. He is so smal that his views are also small, even if the first surgery just buys time. They will feed him a full cream diet the night before do it increases the chyle in his system and hopefully makes the leak easier to see. Also on a bright note after two weeks they let him eat!!!!!!! To say he was excited was an understatement! We fed him some macaroni, toast, and a graham cracker:) he loved it!
My family sent a box today that had everything I could think to put in a box to keep s two year old entertained. The best thing it had was all the love, thoughts, and just feeling of home wrapped tight inside. How blessed I sm to have the support system I do. I'm pretty homesick right now. I'd give anything to see the green pastures outside my window when I wake up. To shell the barn while I get a bucket of grain and yell to the horses to come on do we could get saddled up. I miss the mountains, I miss the ditches, the smells, the taste of the air, the people, everything, I just miss home, I miss my family.
Tonight is jacies wedding and little Maggie is in Idaho with the girls. I miss my baby and can't wait to take Garrett out of here. To see the two of them play! No more chords or beeps, no more needles or blood pressures. Just trikes and swing sets. Rolly pollies and grasshoppers. Kittens and chickens. Day in and day out plain boring life. I'm ready I yearn for it. I pray that somehow our pleas to heaven will be heard, that our little family can be together, happy, healthy and whole!
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