Right when I was writing this morning Garrett woke up and then threw up. I debated for an hour before I texted john. He was really fussy last night but hasn't had anymore symptoms today. They are doing a transfusion now and I think we may still get to go!
Saturday Maggie and I went to get dinner and john took Garrett to the garden. He sat him on s chair and when he went to pick him up somehow his drain tube caught and pulled out the stitch and an inch or do of tubing. By the time the doctor came to look at it the drain was all the way out. I do think Heavenly Father works in mysterious ways. We were freaking out, john claims he wasn't but he was. So far his body has handled the drainage really well. We do know there is still some discharge, he acts irritated quite often. He is still pretty pale and doesn't have much stamina but everyday is s little better than the one before. They have weaned him off of his tpn over the last few days and we are waiting for his last antibiotic treatment for the mrsa now.
The doctors are putting him on an antibiotic that they use on aids patients for his immune system. His levels are all about as rock bottom as they can get. He will take that until everything is more up to par. I think we will be working with an immunologist at primary childrens for the next while when we go home to Utah. They don't have a pediatric immunologist in the state of Oklahoma, just one more reason to move Johnny:)
Maggie is so excited we are going to be together as a family. I wish I could have recorded her when I told her we were all going to the motel together. If you could define glee that was her pure emotion! She asked if Garrett was all better and we could go home to our Oklahoma house.
Last night we went out to the garden. There was three little boys all under two, all had the familiar brown bag they use to hang the tpn under on the iv pump. They all had pic lines and all looked sick. It was almost surreal that just last week we were in the same spot, the same what ifs and wondering what ifs. My heart aches for them. How glad and thankful I am for modern medicine, for doctors that stretch the limits, yet how much you hurt for the little souls who are so sick. Hospitals are not a place where babies should spend their growing days.
Thank you to everyone for all the prayers. I told someone that even though I have told people I pray for them you never really realize how much it means until you are on the receiving end. I have felt your love and the sweet spirit of a Heavenly Father that I KNOW is mindful of me and my little family.
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