Discharge!!!!!!!

Well today is a day that we have wondered would really ever come!! The last week has been a roller coaster but the lows haven't been nearly as low and we have had many more highs. Garrett spiked a fever 9 days ago. He had had a really good night and was as happy as could be when he went to sleep. He'd ate a full thing of Cheerios and drank his fat free milk like a champ. At about 1:30 I could tell he was getting a fever. All of the night nurses have complained they can't get a temp on him in the night because he sleeps with his arm out away from his body and the thermometer won't register. I called the nurse and she said his temp was low enough she wasn't worried. As a mom when you lay by your child 20 out of 24 hours you know when something is amiss. He was too hot and too uncomfortable. I called her again a half an hour later and she retook his temp under the same arm. It was 101.5 so she brought in some Tylenol. He was livid by this time. Trying to get a toddler that is mad to take medicine in the little of the night is like trying to part the Red Sea. We got it down him but I could tell after about five min everything was coming back up. He threw up everywhere. They came in and changed the sheets. He has had a lot of anxiety when the nurses are in the room and by this point was a pretty sad little guy. The doctors ordered tests and labs and started him on antibiotics. About this time they started to worry about how anemic he was. We have been giving iron supplements for about a week now. The nurses are also having a hard time getting his pic line to draw blood. They had been taking it out of his tpn line. If they didn't flush well enough his numbers came back scewed and they would have to redraw with another waste and another draw. I'm sure they thought I was crazy, by now I'm pretty aware of certain things. I would tell them they needed to flush extra and they would just smile and do the regular flush. An hour sir so later they would come back in with scewed results. One day they pulled his blood three times. His little body couldn't keep up. Thursday night they woke me up at 3:30 or so to sign papers to give a blood transfusion. He was too anemic they felt to wait. We also did an ivig transfusion in Friday and will do another today. The fluid they pulled off of his belly came back positive for mrsa. This was my low day. I knew how mean it could be. John really felt like the antibiotics were working so we kept our chin up. By this point his drain had also went way down, like to 100 or less ml a day. His tummy was also looking good. It's pretty hard to get to excited because you start anticipating another set back and preparing for it emotionally. But they kept flushing his drain and it was flushing awesome, one day they pulled off about 260 but a few days later they couldn't pull anything.
Friday night john felt confident enough to stay with Garrett so I went to the motel with Maggie, to say she was happy was an understatement. She is like a little goat. She jumps and runs like a little goat. She has to run up every set of steps and see how fast she can come down every wheel chair access. She is our happy thoughts during all of this and truly out little sunshine. We take her baby buggy with us everywhere. If Garrett is lucky she lets him push it:)