Tomorrow is a big day and we are praying for a miracle to a Heavenly Father that can work out things bigger than what we can handle, bigger than what we can imagine. We are praying that somehow we will have a miracle. I have came to the realization that heavenly fathers miracles in this life are worked out by people with skills and talents, those who have refused to settle and have continued to push themselves to excel. Talent, knowledge, skill, the unknown and faith all work out a miracle. One of our nurses came to say goodbye. Even here you know there are prayers being asked for our little family and for Garrett. What a comfort this has been. I don't know why it has never dawned on me before but last night I prayed for the other families here, the other little souls who don't know really what's going on or why. There are so many little ones that have sad little stories and their families are searching for the same answers and the same miracles. I pray they can find them. The hardest thing to add to my prayers is thy will be done. Yet with that I also have faith in a bigger plan than all of this. I know that Heavenly Father is aware of Garrett and if my family and one way or another it will work out.
Today was a happy, good day with lots of smiles from both Maggie and Garrett. It has been such a blessing to have Michelle here. Going to miss her strength and presence more than I can stand. She has always been a rock for me to lean on and the older I get the more I realize how dependent I am on her and how grateful I am that Heavenly Father gave her to me for a sister.
Garret's drain has been causing a huge amount of pain. We are realizing it was his main source of discomfort. It plugged yesterday morning so they took it out last night. His little tummy is quite distended and I know it is uncomfortable but he is just glad to have it out. He has been so much happier and active today. His center of gravity is scewed with the extra weight and he is terribly wobbly and weak but he was our happy soul today. They have a park here with big old trees, flowers, squirrels, robins, and sparrows. It is the happiest spot here and we spent a lot of time out there today, the sunshine, green grass, and blue skies is more of a comfort and healing power than anything I can describe. You need out of the four walls of a hospital.
Tomorrow they will replace the drain, do another lyphiocardiogram, and hopefully find area that they can do what is called schlera therapy to and shut off the source of the leak. This is plan b, Dr Lillis that is doing the procedure is very smart, confident and kind. I appreciate those talents more everyday. He is the first case in tomorrow morning. John took Maggie and Michelle to the hotel and is coming back here to sleep tonight.
Praying for tomorrow!!!
Jeannie
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